Advocacy & Action

Coverage must
become care.

Protecting and expanding access to medical care for children and young adults with PANS/PANDAS in Massachusetts.

Look. Foundation is calling on state leaders and healthcare institutions to keep treatment within reach—for families who need care today and the next family whose child becomes ill.

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Massachusetts advocacy / Updated November 5, 2026
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Latest action November 5, 2026

An urgent appeal to
the DPH Commissioner.

We asked Commissioner Robbie Goldstein to intervene before MGB’s planned January 1, 2027 program closure and meet with Look., treating physicians, and state legislators.

The letter requests personal review under 105 CMR 130.122(C), support for keeping care in place through at least January 2028, and a written plan identifying physicians who will provide ongoing medical treatment.

“The insurance mandate means little if there is no physician available to provide the treatment it covers.”

From Look.’s November 5 letter
Read the DPH letter PDF · 2 pages
First page of Look. Foundation’s November 5, 2026 letter to Commissioner Robbie GoldsteinThe full request, in our own words.

What we’re working toward

A system families can reach.
Care they can count on.

Our requests focus on immediate protection and lasting clinical capacity.

01 / CONTINUITY

Keep care in place.

Prevent interruptions in established medical treatment while a sustainable plan is secured.

02 / CAPACITY

Name the path forward.

Identify receiving clinicians, the care they will provide, and how patients will obtain referrals and appointments.

03 / EQUITY

Make access real.

Build workable options for MassHealth members, young adults, and newly ill children—not only families able to travel or pay privately.

The public record

From raising the alarm
to calling for intervention.

Read our correspondence and the policy materials behind our requests. Most recent first.

Download all 6 documents Combined PDF · 14 pages
Department of Public HealthLatest letter

Request for intervention & an urgent meeting

Look. asked Commissioner Goldstein to review the threatened loss of PANS/PANDAS medical services, help preserve care, and obtain a written plan for established and future patients.

What we asked for
  • Personal review under 105 CMR 130.122(C).
  • Support for maintaining the program through at least January 2028.
  • A plan naming receiving physicians and explaining treatment access.
  • An urgent meeting during the week of November 9–13, 2026.
Read the letter PDF · 2 pages
Office of the Attorney General

Request for an independent review

Look. asked Attorney General Andrea Joy Campbell to examine the planned MGB program closure, interruptions in care, and potential patient-access, disability-rights, and consumer-protection concerns.

What we asked to be reviewed
  • Continuity of care and whether viable receiving services are available.
  • Potential disability discrimination and barriers to equal medical access.
  • MassHealth access and institutional accountability.
  • The use of the AAP Clinical Report in treatment denials and decisions about care.

These are questions raised for independent review; the letter does not report findings by the Attorney General.

Read the letter PDF · 2 pages
Office of the Governor

A renewed call for executive leadership

Following MGH’s closure announcement, Look. returned to Governor Maura Healey with an urgent appeal and practical recommendations to stabilize access to care across Massachusetts.

What we proposed
  • Convene state leaders, clinical experts, and patient advocates.
  • Secure continuity of treatment and an interim multidisciplinary consultation pathway.
  • Expand clinical capacity, provider education, and young adult care pathways.
Read the Governor letter PDF · 3 pages

Supporting materials · August 2026

Policy briefing memorandumClinical access gaps & proposed administrative solutions4 pages Massachusetts fact sheetPublic-health gaps & opportunities for leadership1 page
Office of the Governor

An early warning about a growing crisis

Look.’s January letter warned Governor Healey about the breakdown in clinical access and asked for executive leadership to help rebuild a sustainable system of care.

Why we reached out

The letter described diminishing clinical capacity, families leaving the state for care, and the limits of an advisory council’s ability to resolve the crisis without executive action.

Read the letter PDF · 2 pages

This record reflects Look. Foundation’s requests and the information presented when each document was issued. Historical documents are preserved as sent. Last updated November 5, 2026.

Related advocacy

Understanding the AAP report.

Read the joint rebuttal and concerns raised about the AAP PANS Clinical Report.

Explore the AAP resources

Keep the conversation moving

Help bring this record
to the people who need it.

Share these documents with your legislators, healthcare leaders, and community. Questions about Look.’s advocacy? We’d like to hear from you.

Contact Look.