“A Pivotal Time in PANS & PANDAS History”

On June 12, 2026, Jennifer Vitelli, Executive Director of the Look. Foundation, delivered this address at the Going the Distance for PANS/PANDAS Dinner, hosted by The Alex Manfull Fund at the Army Navy Country Club in Arlington, Virginia.

Held as part of 36 Hours of PANS/PANDAS Advocacy in Washington, D.C., the evening brought together families, young adult survivors and advocates, physicians, researchers, legislators, and nonprofit leaders committed to moving this field forward.

Vitelli reflected on the extraordinary progress this community has made and the urgent gap that remains between what science and families know and the care patients can actually access.

“Medicine rarely changes simply because evidence exists. It changes because people push.”-Jennifer Vitelli

Her message was both a challenge and a call to collective action: keep pushing, bring new champions into the movement, and refuse to allow PANS/PANDAS to become a diagnosis of privilege.

“Let’s make sure the next generation of families doesn’t just find answers. They find care.”-Jennifer Vitelli

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